Cure CF Now: Huge day for cystic fibrosis

Today is a huge day in the fight to cure cystic fibrosis. This morning, the Cystic Fibrosis Foundaiton and Vertex announced that the Phase 2a trials of VX-770 have shown positive results in targeting the basic defect in cystic fibrosis. This is HUGE. This is the first time ever where a drug has shown results that actually reduced the chloride levels in sweat tests. As with all news like this, the Foundation cautions people to be "cautiously optimistic", but just the fact that something like this exists is exciting. Even if it fails, they have a base to build on for future drugs. It's coming!

Whenever I hear of things like this, I think about what a few of the volunteers I talked to when we first got involved would always say: "You think this gala is a big party? Just wait until the cure comes and we'll be throwing the biggest party people have ever seen." Today has the feel like we should be picking out invitation designs.

http://www.cff.org/aboutCFFoundation/NewsEvents/index.cfm?ID=8476&TYPE=1670

http://www.cff.org/aboutCFFoundation/PressRoom/2008PressReleases/index.cfm?ID=8475&blnShowBack=False&idContentType=3617&IDCT=3617

http://investors.vrtx.com/releasedetail.cfm?ReleaseID=301749

Welcome to Cure CF Now

Welcome to Cure CF Now. While I don't always post regularly, I do try to keep up on fund raising ideas and important medical news when I can. Look around, link to this site, and comment. Thanks for visiting.

Why the ads? Normally, I wouldn't look favorably upon sites with ads all over them. So what made me pick a blog that had ads and why would I choose to have them in here? They pay me and I donate that money to cf research. It's that easy. The ads should have some relationship to the posts at hand, which makes them a little easier to accept. By no means am I recommending that you click them unless they actually interest you. But when you do click them, know that the money that ad just generated goes to cf research.

3 comments:

Liber AugestApril 1, 2008 at 5:11 AM
Very nice post ;) Added to favourites.
MelissaMay 2, 2008 at 3:54 AM
Hi! I ran across your blog and I just wanted to tell you that you and your family/friends are doing an amazing job! Thank you so much for staying on the frontlines of fund-raising for CF!
RachelJune 1, 2008 at 11:00 PM
Hi! I stumbled across your blog after hearing about your family on HGTV. Your little boy is precious! My husband and I have a 7 month old boy with CF, so we were very excited to hear about the publicity and attention you brought to the cause. Thank you for all you do to help find a cure!