Another huge delay from me in updating this site. I've been doing more than writing. What has happened since December?
The Naperville wine event was closed out and was very successful. We actually just just started planning for the 2009 event and may have found the venue yesterday. Stay tuned.
Poker is underway. I spent a lot of time this year talking to other charities and how they do their tournaments. Picked up a few tips and a lot of great contacts. Learned a few laws along the way too. This year's CFF Casino Chicago is April 4th.
Walk talks have started. We had the first one at our house about a month ago. A couple new committee members. Not much to report yet.
CFF will be in the South Side St. Patty's Day parade again this year. For the first time in years it sounds like a number of people will actually come out for it. We had a dismal showing for a few years after we were grand marshal, which was a little embarrassing. Hopefully we come back strong this year.
Hopefully more updates to come. I find it easier to update Facebook and LinkedIn with events, so hopefully I can find an easy way to update this site as well. No clue if anyone even reads it, but maybe someday I'll have something interesting enough for people to come here regularly and read.
Catching Up after a successful Wine Event
It's been a while since I posted anything. The wine event had us really busy and then it was right into the holidays. The wine event was a fantastic evening. Attendance wasn't what we had planned, but in hind-sight, this is a good thing. We had a packed room. The sommelier, Arthur Black, went out of his way to travel up from Indianapolis to be present for the event and give it some prestige. We had the opportunity to go out to dinner with him the night before and it was interesting and entertaining. I'm not a big wine lover myself, but the way he described the wines we tasted and the things he pointed out showed me a whole new side of wine. Back to the event, the turnout was great and the attendees were generous, which was a lt to ask given recent economic events. There were a couple of surprises in the Bid for a Cure following an amazing speech by Rosie Woods. Rosie is 45+ and has cf. Back when she was a child, she was the poster child for CFF one year. Like all parents at that time, hers were told she wouldn't see ten years old. At her age, it's a fantastic case for never giving up hope. Check out some pictures from that night.
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more about "2008 Uncork A Cure Wine Event", posted with vodpod
Thank You!
Hello Family and Friends,
We would really like to thank you for your continued support of the Cystic Fibrosis Foundation. We have had another very successful year of fundraising. Once again, you blew us away with donations raising over $20,000 in Colin’s name in Illinois and totaling over $30,000 with our other three states. Chris and I were recently telling someone about the fundraising efforts we do to for the Cystic Fibrosis Foundation and we were referred to as “heroes” for working so hard to find a cure. We feel that all of you are our “heroes” for your endless (and I mean endless) support for our cause. We WILL get there someday.
We would really like to thank you for your continued support of the Cystic Fibrosis Foundation. We have had another very successful year of fundraising. Once again, you blew us away with donations raising over $20,000 in Colin’s name in Illinois and totaling over $30,000 with our other three states. Chris and I were recently telling someone about the fundraising efforts we do to for the Cystic Fibrosis Foundation and we were referred to as “heroes” for working so hard to find a cure. We feel that all of you are our “heroes” for your endless (and I mean endless) support for our cause. We WILL get there someday.
Inhaled Drug Devices
I came across an article this morning on a new inhalation device from a company in Israel called Aespironics. It's extremely thin and promises to be really cheap. From their Website, they describe it as:
[caption id="attachment_55" align="alignleft" width="198" caption="Aespironics Inhaler"]
[/caption]
This article this morning reminded me that I never put up any info on Nektar's product. Nektar is a company based just south of San Francisco. My brother works there as an senior engineer and they work to turn drugs into inhalable drugs. They worked on insulin a number of years ago and now they are doing Tobi Inhaled Powder (TIP) and Cipro (CIP). They have a new inhaler as well that they are trying to get through final phases of FDA. Their device is very tiny as well. I looked around for a picture on their website and couldn't find one. However, they have a nice video on the device here.
[caption id="attachment_55" align="alignleft" width="198" caption="Aespironics Inhaler"]
[/caption]A tiny breath-activated turbine inside the inhaler beats at a mesh packet containing the drug particles. This releases all the particles into the air at the same time.
This article this morning reminded me that I never put up any info on Nektar's product. Nektar is a company based just south of San Francisco. My brother works there as an senior engineer and they work to turn drugs into inhalable drugs. They worked on insulin a number of years ago and now they are doing Tobi Inhaled Powder (TIP) and Cipro (CIP). They have a new inhaler as well that they are trying to get through final phases of FDA. Their device is very tiny as well. I looked around for a picture on their website and couldn't find one. However, they have a nice video on the device here.
A small bump in the Wine Event
We've been talking about our wine event for many months and we took a small break during the Great Strides walk season. We got back into it this week and encountered our first bump in the event. It seems the restaurant we had booked for the event has gone under due to the economy. They called the CFF office and refunded the money that was put down as a deposit, but now we are left with no location. Trisha and I are heading out tonight for our anniversary and we plan on checking out a few other places in the same area. This is just a minor hiccup, nothing we can't get around. Stay tuned.
Presentation at Nektar
This last Friday, June 27, Colin, his sister Megan, his mom, and I went to visit his uncle Kevin at work in San Carlos, CA. Kevin works at Nektar, which develops Tobi Inhaled Powder and Cipro Inhaled Powder. Kevin set up an opportunity for us to present what it's like to live a day in Colin's life. About 50 people showed up and listened to us tell Colin's story and the story of how we got involved in and continue to be involved in CFF fund raising. When we were done, Colin got up and tried on his vest for everyone to see. They asked a number of great questions related to things we have tried for Colin and how the work they are doing might help Colin and us. They also had a few suggestions on things to look into for him, such as some basic yoga moves. We'll have to check into that. We had a great time giving the speech and hope to be able to go back in a year or two for some updates. Later that day, Colin came down with a fever and general sickness that one of his sisters passed to him, so we at least know why he wasn't his cheerful self in the presentation. He got over it within the day and got to enjoy the rest of our San Francisco trip.
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