Why the move? A couple of reasons: 1. Blogger/Blogspot is a Google property. I recently began working at Google and decided I'd be using Google products. 2. Blogger allows some context specific ads in the right side of this blog. I get income from those ads, which I plan to donate back to cf research. Not a bad circle if you ask me: Google employs me and even allows me time to do this, I use their products which in turn pay me back, I donate that money to research and in the process can get matching from my employer. Win-win-win.
New home
You are looking at the new home of Cure CF Now. It's Sunday morning and I am monkeying around at the kitchen table while the kids get going. Anyway, I am not done moving over from the old hosted spot. Hopefully this coming week I will move over completely.
Be a part of our walk team!
Spring is upon us and that means our annual Great Strides Walk for Cystic Fibrosis.
On Saturday, 6/13, we'd love to see all of you come out to the walk at the Naperville Riverwalk Pavilion or to the after-party at our house. The walk is always just the right length (not too long) and the day is really family friendly, including breakfast and lunch, a DJ, and a few surprises. The after-party at our house is open to everyone, whether you walked or not.
This will be Colin's 7th walk. Those first months threw us so many curves and so many unknowns all at once and only because of all of the help of our family and friends did we make it through. So, so much has changed since Colin's first walk, when he was just two months old. The median life span of someone with cf has increased from 31 years old to 38 years old and better, more effective drugs now exist that cut down on the number of pills he has to take during the day and the amount of time he needs to spend on nebulizers, which is currently at about an hour a day.
There is one thing that hasn't changed since the time Colin was born: There is still no cure for cystic fibrosis. There is still a shortened lifespan, there are still numerous drugs a day, there are still doctor and hospital visits a half dozen times a year.
We relied heavily on our family and friends to help us those first few months of Colin's life and we continue to rely on you. There are some absolutely amazing drugs in the works and a greater hope now than ever before that we'll see a cure to this disease in Colin's lifetime. But we're not there yet. The drugs in the CFF pipeline require over $100million in funding every year to keep the research and trials going. As you are no doubt aware, there's been a bit of a financial issue going on in the world and our fundraising has not been immune to it. Unfortunately, this disease hasn't paused while banks figure out their plans.
Please help us this year. We completely understand the financial situation and we're not looking for massive donations. We're asking you to donate what you can, and because asking is free, we'd like you to ask your friends and family for whatever small donations they can provide as well.
Please donate and help us find an end to this disease. Thank you so very much.
1. Online Donations: http://www.cff.org/Great_Strides/ChristopherWalsh594873196(Press Click to Donate at the bottom)
2. Join our team (6/13 at Riverwalk Grand Pavilion) and donate at the walk: http://www.cff.org/Great_Strides/ChristopherWalsh594873196 (Press Join My Team at the bottom)
3. Come to our party and donate there. Shoot me an email and I'll provide details as the day gets closer.
Chris and Trisha Walsh
Chris@CureCFNow.com
On Saturday, 6/13, we'd love to see all of you come out to the walk at the Naperville Riverwalk Pavilion or to the after-party at our house. The walk is always just the right length (not too long) and the day is really family friendly, including breakfast and lunch, a DJ, and a few surprises. The after-party at our house is open to everyone, whether you walked or not.
This will be Colin's 7th walk. Those first months threw us so many curves and so many unknowns all at once and only because of all of the help of our family and friends did we make it through. So, so much has changed since Colin's first walk, when he was just two months old. The median life span of someone with cf has increased from 31 years old to 38 years old and better, more effective drugs now exist that cut down on the number of pills he has to take during the day and the amount of time he needs to spend on nebulizers, which is currently at about an hour a day.
There is one thing that hasn't changed since the time Colin was born: There is still no cure for cystic fibrosis. There is still a shortened lifespan, there are still numerous drugs a day, there are still doctor and hospital visits a half dozen times a year.
We relied heavily on our family and friends to help us those first few months of Colin's life and we continue to rely on you. There are some absolutely amazing drugs in the works and a greater hope now than ever before that we'll see a cure to this disease in Colin's lifetime. But we're not there yet. The drugs in the CFF pipeline require over $100million in funding every year to keep the research and trials going. As you are no doubt aware, there's been a bit of a financial issue going on in the world and our fundraising has not been immune to it. Unfortunately, this disease hasn't paused while banks figure out their plans.
Please help us this year. We completely understand the financial situation and we're not looking for massive donations. We're asking you to donate what you can, and because asking is free, we'd like you to ask your friends and family for whatever small donations they can provide as well.
Please donate and help us find an end to this disease. Thank you so very much.
1. Online Donations: http://www.cff.org/Great_Strides/ChristopherWalsh594873196(Press Click to Donate at the bottom)
2. Join our team (6/13 at Riverwalk Grand Pavilion) and donate at the walk: http://www.cff.org/Great_Strides/ChristopherWalsh594873196 (Press Join My Team at the bottom)
3. Come to our party and donate there. Shoot me an email and I'll provide details as the day gets closer.
Chris and Trisha Walsh
Chris@CureCFNow.com
Naperville Great Strides - June 13
Why are updates here so few and far between?? Work, being a soccer coach, running the hugely successful Casino Chicago (I almost broke my arm patting myself on the back there), kids birthdays, communion, ..... Anyway, the Great Strides walk is here again and as every year, we're scrambling to get everything ready. This year is a little tougher because of the economy, but the same committe we have every year (Trisha, Patti, Kirsten) is busting butt to get it done. I'll update again here soon with more details. http://www.cff.org/Great_Strides/ChristopherWalsh594873196
Catching up...
Another huge delay from me in updating this site. I've been doing more than writing. What has happened since December?
The Naperville wine event was closed out and was very successful. We actually just just started planning for the 2009 event and may have found the venue yesterday. Stay tuned.
Poker is underway. I spent a lot of time this year talking to other charities and how they do their tournaments. Picked up a few tips and a lot of great contacts. Learned a few laws along the way too. This year's CFF Casino Chicago is April 4th.
Walk talks have started. We had the first one at our house about a month ago. A couple new committee members. Not much to report yet.
CFF will be in the South Side St. Patty's Day parade again this year. For the first time in years it sounds like a number of people will actually come out for it. We had a dismal showing for a few years after we were grand marshal, which was a little embarrassing. Hopefully we come back strong this year.
Hopefully more updates to come. I find it easier to update Facebook and LinkedIn with events, so hopefully I can find an easy way to update this site as well. No clue if anyone even reads it, but maybe someday I'll have something interesting enough for people to come here regularly and read.
The Naperville wine event was closed out and was very successful. We actually just just started planning for the 2009 event and may have found the venue yesterday. Stay tuned.
Poker is underway. I spent a lot of time this year talking to other charities and how they do their tournaments. Picked up a few tips and a lot of great contacts. Learned a few laws along the way too. This year's CFF Casino Chicago is April 4th.
Walk talks have started. We had the first one at our house about a month ago. A couple new committee members. Not much to report yet.
CFF will be in the South Side St. Patty's Day parade again this year. For the first time in years it sounds like a number of people will actually come out for it. We had a dismal showing for a few years after we were grand marshal, which was a little embarrassing. Hopefully we come back strong this year.
Hopefully more updates to come. I find it easier to update Facebook and LinkedIn with events, so hopefully I can find an easy way to update this site as well. No clue if anyone even reads it, but maybe someday I'll have something interesting enough for people to come here regularly and read.
Catching Up after a successful Wine Event
It's been a while since I posted anything. The wine event had us really busy and then it was right into the holidays. The wine event was a fantastic evening. Attendance wasn't what we had planned, but in hind-sight, this is a good thing. We had a packed room. The sommelier, Arthur Black, went out of his way to travel up from Indianapolis to be present for the event and give it some prestige. We had the opportunity to go out to dinner with him the night before and it was interesting and entertaining. I'm not a big wine lover myself, but the way he described the wines we tasted and the things he pointed out showed me a whole new side of wine. Back to the event, the turnout was great and the attendees were generous, which was a lt to ask given recent economic events. There were a couple of surprises in the Bid for a Cure following an amazing speech by Rosie Woods. Rosie is 45+ and has cf. Back when she was a child, she was the poster child for CFF one year. Like all parents at that time, hers were told she wouldn't see ten years old. At her age, it's a fantastic case for never giving up hope. Check out some pictures from that night.
[vodpod id=ExternalVideo.759958&w=425&h=350&fv=host%3Dpicasaweb.google.com%26noautoplay%3D0%26RGB%3D0x000000%26feed%3Dhttp%253A%252F%252Fpicasaweb.google.com%252Fdata%252Ffeed%252Fapi%252Fuser%252Fchris.curecfnow.com%252Falbumid%252F5268154185441389457%253Fkind%253Dphoto%2526alt%253Drss]
[vodpod id=ExternalVideo.759958&w=425&h=350&fv=host%3Dpicasaweb.google.com%26noautoplay%3D0%26RGB%3D0x000000%26feed%3Dhttp%253A%252F%252Fpicasaweb.google.com%252Fdata%252Ffeed%252Fapi%252Fuser%252Fchris.curecfnow.com%252Falbumid%252F5268154185441389457%253Fkind%253Dphoto%2526alt%253Drss]
more about "2008 Uncork A Cure Wine Event", posted with vodpod
Subscribe to:
Posts (Atom)