On April 23, 2003, Colin was born with cystic fibrosis. After undergoing surgery for a ruptured bowel at two days old and spending a month in the hospital, we attended our first CFF walk only two weeks later. We've never stopped fundraising since then. This (occasionally posted to) blog highlights some of the things we do to raise money and some of the news on the progress of cf research.
Wine Event and Museum Event
HGTV Design on a Dime
Horseshoe Casino's Casino Chicago
2006 Accenture Tri for CFF
The Accenture Chicago Triathlon is coming up and a whole bunch of people are participating for me. My good friend Kevin Blake will be running his second triathlon for me, as will Uncle B and David Athens. My Uncle Mark and his neighbor Mick will be competing in their first Accenture Tri for me. My dad is going to be part of a relay team with another CF dad, Chris Horton, and the director of the Chicago CF office, Carolyn Cronin. They're all working really hard for this event, both by working out as well as fund raising. Please take a minute to read through all of this to see how you can help them help me.
Colin's Walk Letter from 2007
Dear Family and Friends,
It's almost time for our annual walk for the Cystic Fibrosis Foundation on June, 16th. We got a huge head start on our fundraising this year with a very successful event at the DuPage Children's Museum. Thank you again to all who attended and donated.
Colin's Walk Letter from 2006
As most of you already know, my mom and dad are always trying to raise money for the Cystic Fibrosis Foundation to cure my CF. Dad says there are a lot of new drugs in development that are going to help me someday soon and that doctors and scientists are making great progress. Dad says progress is expensive and this is why we need your help.
Colin's Walk Letter from 2005
We’re coming up on our third Great Strides Walk for Cystic Fibrosis and the beginning of Colin’s third year of life with this disease. We pray for a better year and we really need your help to provide a better life for him, a life without this disease. You can't tell Colin has CF by looking at him and if I didn't tell you, it might be years before you knew. CF is a degenerative lung and digestive disease and over time, it will get worse until the lungs just fail. There currently is no cure. The disease is too small for pharmaceutical companies to invest time and money on. It’s not cancer, heart disease, or diabetes, but the end result is the same. We are the only way this disease is going to be cured. The money has to come from us. Some say that a cure is less than a decade away. Say you were a part of it.
A new CureCFNow/Colin's Clan
The first few posts here will be out of order. I am going to pull over the pages I had in Colin's Clan website and then retire that old site. So, the first few posts will actually be from years past.
Finally, they say that most blogs have a viewership of less than six people, including the author. Not sure if this will be different or not, but I hope it will.